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THRF Group Charities

Information For Carers

Carers play an important role in the care and support of someone with Parkinson’s.

pwp and primary support person

Carers play an important role in the care and support of someone with Parkinson’s.

They are often partners and family members, but could also be friends or neighbours. Many carers who provide care and support will not view themselves as a ‘carer’ – for this reason we also use the title ‘primary support person’.

As a carer/primary support person you also need support. We have support groups, counselling, coaching and can assist you with your own carer wellbeing plan and how to access services to support you in your role. Call us on (08) 8357 8909 to find out what is available for you.

To be a good carer you need:

  • an understanding of some of the special difficulties associated with Parkinson’s
  • to learn when to help and when not to
  • to allow time for the person to do things for him or herself, without hurrying
  • to not take over
  • knowledge about who to go to for help for things such as aids to daily living
  • to have survival strategies
  • to be honest in your relationship
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Carers suffer from:

  • icon fundraising purple Frustration
  • icon fundraising purple Depression
  • icon fundraising purple Sleep disorders

Carers need:

  • icon donate purple Information
  • icon donate purple Encouragement
  • icon donate purple A listening ear
  • icon donate purple Recognition
  • icon donate purple Opportunity to express frustration
  • icon donate purple Support
  • icon donate purple Good communication with health professionals
  • icon donate purple Easy availability of treatment
  • icon donate purple Quality time away
  • icon donate purple Access to respite care
  • icon donate purple Emotional support
  • icon donate purple A good night's sleep
  • icon donate purple To look after themselves and their own health
  • icon donate purple A sense of humour
  • icon donate purple Pampering from time to time

In addition to support we provide, you can find additional support through the Carer Gateway, ph: 1800 422 737.

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by Parkinson’s.

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